Saturday, April 4, 2009

Donnie finally came home yesterday around 1:00. We had to wait for insurance and hospice approval and everything to be straight. The most important thing was making sure he was able to come home with a pain pump to control his pain. So we spent one last night in the hospital. They finally got us cleared to go around 12:00. I woke Donnie and told him that we were cleared to go home. He stretched his arms out and said "thank God, I get to go home"
They gave him quite a bit of pain meds to last him until we got home and got him on the pain pump. My brother Todd and friend Lisa made sure that the room was ready for when the hospital bed was delivered. He was fitful on the way home but it was an uneventful ride.
We got home and pulled up to the front door and you could see the joy on his face to be home. he wanted immediately in his recliner, then the couch, he couldn't make up his mind. It took a moment to get him settled. They got his pain pump hooked up and he mostly slept off and on the rest of the day. He slept so soundly, I guess he just needed to be at home. He was a bit out of it from the pain meds and was up and down throughout the night. He gets quite confused from the medicine. Needless to say it was a sleepless night, for me at least. I seem to be the only one who he will let help him as I can decipher what he is trying to say when can't make out the right words.
It was a long and emotional day for all of us. It was good to see him so happy to be home but so bittersweet at the same time for we knew what it meant.
Yesterday and today were the garage sale/jambalaya sale that was put on by our family and friends as a fundraiser. All I can say is that is was a huge success and we are deeply touched and thankful to be blessed with so many people who love and support us. Our community has just been amazing.
Donnie was up early this morning and was determined to be alert as much as possible and enjoy the family around him. He got up and had coffee with us and I wish I would have been prepared with the video camera for when Caley saw him. He tried to hold her in the chair but wasn't strong enough too so he sat down on the floor with her. She just couldn't get her arms around his neck enough. I don't know who was happier. Him or her. It was a beautiful moment to witness. It tugged at all of our heart strings.
He stayed awake for about 3 hours and was pretty lucid. He had moments of confusion but overall it was very good. We all needed it. He took a nap for a few hours and got up again for an hour or so. He got up 2 or 3 times today for brief periods. He sat on the swing momentarily and napped in his recliner. It was a good day for him but he was extremely exhausted. I think he was just so happy to be home. His pain seems to be fairly well controlled.

Some special notes to some special people.
To the staff at the oncology unit at Baton Rouge General. I cannot express how touched I was by the way that you all cared for Donnie and for me. It is refreshing to see people that do their jobs for the reason that they care for their patients. I think they have some very special people there and we can never say thank you enough for the difference that they made. Dustin, Cinda, Jamie, Tim, Trudy, Leslie, Tosha, Kim, Kim, Beth, Barbara, Rachel, Bruce, Kory, Chelsia, Maya, Jose, Angela and I know that I am bound to be forgetting someone but THANK YOU.

To our friends and family - I don't know where we would be without all of your support. Shelia for being Donnie's hospice nurse, Lisa, Mom, Shantel, Justin, Courtney, David, Daddy, Cheryl,Paige, Melissa, Missy , Sharon , Joyce, Sis, Bama, Bones, Bill, Danny and anyone else I am forgetting to mention. Thank you for working so hard to make today such a success. I know that everything that you did took time away from your family and we very much appreciate it and love you all.

Thank you to everyone for respecting our space and time as a family. Again if you want to see Donnie, please call me to see if he is up to visitors first. Thank you so much for understanding how hard this is for all of us.

God Bless you all and keep praying that Donnie will have many good days to spend with his family!
Love to all


Jenn M said...

I just found your blog through another one. I'm so sorry you and your family are having to deal with this crappy disease. God bless in this difficult time. May you enjoy each moment.

Deb said...

I've been checking your blog for the past few days to see if you've had a new post. I trust that Donnie is feeling a little better now that he is at home.
My thoughts and prayers are with you and Donnie and all of the family.
God Bless!